this is a page for

Browsing Tag: caregiving

Rest in the Time of Coronavirus (and, um, Brain Cancer)

I was talking with my brother, Paul, sister-in-law Sarah, and David this week, when Sarah and I got to chatting about writing. She’s diligent, writing 500 words every morning at her computer before starting her work day, and it impresses me. (She also walks miles every day, does other exercising every day, cooks elaborate meals every day–meanwhile I sit on the couch to type this in the sweats I’ve been wearing for two days and I’m about to throw some shredded chicken and store-bought enchilada sauce in the oven and call it dinner. I know women aren’t supposed to compare themselves, but…you guys, these sweats are from Old Navy. They’re threadbare at this point. It’s all I’m saying). My point is, Sarah is hustling. My life is so anti-hustle these days I can’t even rest properly. (Anyone else not able to sleep anymore? I know it’s not just me.) During our conversation the subject of this blog came up, and Paul thanked me for finally posting something last Friday that wasn’t about…

Coronavirus: He’s the Only One Calling this a Vacation

So here we sit, in the middle of the apocalypse (Kidding, kidding! It’s merely a terrifying plague!), wondering if this is what Orwell had in mind when he began writing fiction–no, not Orwell! Our present crisis is too scientific for Orwell. Maybe the guy that wrote The Martian? I don’t know. All I do know is that tomorrow’s literary agents better prep themselves for lots and lots of dystopian novels coming their way, because the writers of today suddenly have a LOT of time on their hands to produce–that is, if they can snap themselves out of their shock-induced paralyses to put down the bag of potato chips and write. Did you do your panic shopping? I was looking for lentils at the store a couple weeks ago because the internet told me I needed them, and ended up buying cans and cans of garbanzo beans instead. What am I going to do with this many garbanzo beans, you guys? It’s not like I can make hummus–the internet didn’t tell me to panic-buy tahini. I have to hand it to many of…

10 Survival Tips for the Caregiver (So to Speak)

Oh, hey, hi! How are you? It is weirdly warm and rainy here in our part of Pennsylvania today. I’m writing this in a near-empty Panera Bread (coronavirus!), after having purchased toilet paper online because we ran out at the house (children!) and all of our stores have been emptied of it (coronavirus!). I just ate a bagel with my bare fingers that had not been sanitized ahead of time, and I expect the dry coughs to start shortly. Last week’s progress appointment with Mom’s neuro-oncologist was odd. Here’s the thing: Mom can’t walk more than a few steps at a time. Last week, she couldn’t do even that–couldn’t support her own weight at all–and after an afternoon of physically lifting her from wheelchair to car to wheelchair to seat et al, we expected to hear the worst from her MRI results. But her tumor is stable. Can you believe it? It’s just that her body is failing more quickly than the tumor is advancing. She’s also not always recognizing where her body is in space…