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Browsing Tag: glioblastoma

Update from the Brain Cancer Chronicles: Mom’s Almost There, but Not Quite There, and I’m Not Ready for There Anyway

Let me tell you what’s weird in Brain Cancer World. Two weeks ago, when mom’s hospice nurse came to visit, she declared my mom’s condition “status quo, with deterioration.” I think that means, “Still living, but a little less than she was before.” Last Thursday, a day after we visited with Mary and Tim and one of their brothers and sister-in-law, I got a phone call. Everything the day before had been status quo: Mom slept most of the visit, but when she was awake, she was listening and responding. That day, the day after the visit with the family, something changed, and I raced down to her house. The nurse had stopped by earlier, and noticed that Mom’s color had changed. Her lung capacity was diminished, which we knew, but she had what the nurse called “the Look.” It was this Look she didn’t know how to describe but knew well from her work with dying patients. It’s not a good Look, basically. It’s not a Look we’re going for these days. So, based on…

Rest in the Time of Coronavirus (and, um, Brain Cancer)

I was talking with my brother, Paul, sister-in-law Sarah, and David this week, when Sarah and I got to chatting about writing. She’s diligent, writing 500 words every morning at her computer before starting her work day, and it impresses me. (She also walks miles every day, does other exercising every day, cooks elaborate meals every day–meanwhile I sit on the couch to type this in the sweats I’ve been wearing for two days and I’m about to throw some shredded chicken and store-bought enchilada sauce in the oven and call it dinner. I know women aren’t supposed to compare themselves, but…you guys, these sweats are from Old Navy. They’re threadbare at this point. It’s all I’m saying). My point is, Sarah is hustling. My life is so anti-hustle these days I can’t even rest properly. (Anyone else not able to sleep anymore? I know it’s not just me.) During our conversation the subject of this blog came up, and Paul thanked me for finally posting something last Friday that wasn’t about…

Mom’s Decline, and A Little Psychological Sewing

I thought maybe I should spare you an update this week, because I’m in a crappy, crappy mood (a friend asked Sunday how Mom was doing, and do you know what I said? “Oh, she’s totally dying.” The poor guy looked like I’d slapped him in the face). Mom has been declining again–no sooner did we pull her off hospice than she started acting like, well, maybe that wasn’t the best idea. She’s grown progressively weaker, and has become just sort of older-seeming. (This cancer of Mom’s likes to keep us on our toes, but I much prefer the happier surprises, you know?) On Saturday, David and I had made plans to take the kids to see Mom in the afternoon and have a movie day. The kids were excited–they’d settled on Jumanji, because “cake makes me explode!”–and Mom had been looking forward to it. We went tumbling into her house around 2:15, a big bowl of freshly-popped buttered popcorn in hand, but Mom was nowhere to be seen. The house was quiet…