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Category: Caregiving

Definitely Not How We Wanted It to Go

“Well, this isn’t how I thought it was going to go.” Cian said this to me the week before last. He was lying in bed beside me, and the clock said it was about four a.m. He’d been up since the middle of the night with what I thought was the stomach flu. See, Quinlan had started a barfing marathon a few nights before, then it fell on David, Saoirse, and me simultaneously like an avalanche of awful a couple of nights later (because like all things evil in the storybooks, the stomach flu descends during the night). So when a poop bomb went off in Cian’s room at one a.m., and continued to go off for the next three days (it turns out it was the actual flu this time. Silly us!), well. We were used to digestive grossness by then. Cian, though? Well, our poor buddy was in shock. And so it became the theme of our January: this isn’t how we thought it was going to go. My mom had her brain MRI last week, with a much different follow-up than usual with her…

Where We Are

I was on the phone with my mom the other day, laughing about my parenting skills while David was away for work. “I’m really good, Mom,” I told her, “really patient and calm, right up until about six o’clock.” She laughed, because she remembers. “But after six?” I continued. “Nope, I’m done. That’s when the shutters get closed on my brain and the patience goes out the window.” My mom was listening to me. Sometimes she pays only half a bit of attention to me, especially when the TV is on in front of her (sixteen months into brain cancer, and she can still tell me everything going on in the news), or her caregiver is in the room, or when she’s simply tired or extra-weak that day. But that afternoon, she was listening, and talking, and it almost felt like old times. “Well,” Mom said. “It takes a lot of patience to have patience!” When I started to write this update last week, my post was a bit different than it is today. I was going…

Field Trip

SO. Let’s catch up, shall we? Quinlan, our second kiddo, is in 4th grade, which is The Project Year in her school, aka The Year That Just Might Do In The Parents Yet. One of the fall projects she was assigned involved visiting a place in Pennsylvania as a tourist, and her teacher sent out a list of options that ranged widely in distance and cost. But you know how life goes: by the time I got to the online sign-up sheet (The world of online sign-up sheets is cutthroat, man. Other parents make me nervous), all the cheap/local options were taken, so I started eyeballing two other places that have been on our family’s “wanna see” lists for a while now: Fallingwater and Longwood Gardens. When I broached the ideas to Quinn, who really just wanted to go to Hersheypark and call it a day (ALL READY TAKEN, QUINN), she asked which choice would be one at which her Grammy could join us. Fact: Fallingwater is stairs upon stairs in a wooded forestland. Problem: my mom is in a wheelchair. Conclusion: Longwood Gardens, here we come. We chose Columbus Day…