this is a page for

Category: Caregiving

Field Trip

SO. Let’s catch up, shall we? Quinlan, our second kiddo, is in 4th grade, which is The Project Year in her school, aka The Year That Just Might Do In The Parents Yet. One of the fall projects she was assigned involved visiting a place in Pennsylvania as a tourist, and her teacher sent out a list of options that ranged widely in distance and cost. But you know how life goes: by the time I got to the online sign-up sheet (The world of online sign-up sheets is cutthroat, man. Other parents make me nervous), all the cheap/local options were taken, so I started eyeballing two other places that have been on our family’s “wanna see” lists for a while now: Fallingwater and Longwood Gardens. When I broached the ideas to Quinn, who really just wanted to go to Hersheypark and call it a day (ALL READY TAKEN, QUINN), she asked which choice would be one at which her Grammy could join us. Fact: Fallingwater is stairs upon stairs in a wooded forestland. Problem: my mom is in a wheelchair. Conclusion: Longwood Gardens, here we come. We chose Columbus Day…

From My Bubble to Yours: the Anniversary

It’s been a year since it all happened, my friends. Last year, a day after the sadness of 9/11, when we took a breath and gave our loved ones an extra-long hug and carried on, on until the next year, is when our story with my mom began. That phone call. That drive. I finally told David, during a quiet moment last week, that I have flashbacks to that night, that car drive, my calls for help. I’m embarrassed by that admittance–I’m a grown woman, after all, and this happened during my grown-woman years. I asked him if he thinks they’ll ever go away. I want them to go away. I want the moment that divided before and after to be erased. This is what weighs on me: if it had been a stroke instead of a tumor, my decisions could have killed her that night. Do you realize that? Because I chose to try to find her before getting help. Because I chose not to call an ambulance right away to meet me there. Because I made a decision to drive her to the hospital myself even…

And We Find Ourselves Back at the Beginning

Hi, everybody. Are you good? Did you have a nice summer? Or have you forgotten summer now that most schools are in session so you’re busy pulling out the sweaters and warm boots because YAY I DON’T HAVE TO SUNSCREEN THE CHILDREN ALL THE TIME NOW? I hear you. I mean, I’m not in a hurry, or anything. But the mornings are now quiet without the singsong of our neighborhood birds. The light is different–almost flatter, if that makes sense–and the air outside seems subdued. The season is changing over, quieting down. And I think I’m happy with that–I love autumn–even if, in my world right now, a quiet season doesn’t always mean a quiet life. I owe you an update on my mom. I’ll post something more detailed soon, but in a nutshell, she’s beaten her prognosis (we’re now almost a year out from her diagnosis), has completed treatment (other than a twice-monthly chemo infusion to keep her brain swelling in check), and is working to get her muscles stronger so she can walk…